I have a friend who, shortly after he was married, came down with a mysterious illness. It was causing fatigue, pain, digestive problems, and a bunch of other debilitating symptoms. This guy is young (or was when he first became sick), handsome, and looks fit. He is not in a demographic that you would expect to have trouble being believed, but he had trouble. He’s been accused of faking. He’s been yelled at by a doctor. He and his wife used up all their money, and the illness made it difficult for him to work his job as a builder. Finally, after years of seeking solutions on their own, outside the traditional medical establishment, my friend found a doctor who was willing to look at his blood under a microscope.

Turns out, he has Lyme disease.

It took him fifteen years to get this diagnosis.

As I found out when I read this book, this sort of experience is not unusual for a Lyme patient.

Let’s start with another Lyme testimony

The author, Kris Newby, and her husband were both bitten by Lyme-bearing ticks while on vacation in Martha’s Vineyard in 2002. It didn’t take them 15 years to get a diagnosis … but the disease did ruin their professional lives, use up all their money, and cause them to search through more than ten doctors.

We had brain fog: we couldn’t think, multitask, or remember simple things. The crushing fatigue continued. Our necks felt like they were locked in a vice-grip. Paul’s symptoms were more muscle and joint related. He didn’t have the strength to lift his leg over a bike or press the trigger of a portable drill. Mine were more neurological. I was no longer capable of reading books aloud to my sons before bedtime … I’d run into the side of doorways and had trouble recalling the current month and year. … One day I found myself at a stoplight unable to remember what the red, yellow, and green lights meant.

Rather than admit defeat, Dr. B decided that I was an attention-seeking, hysterical female whose husband was suffering from sympathy pains. He diagnosed us with a “psychosomatic couples thing.”

I spent weeks pulling strings to get an appointment with another infectious disease specialist, this one at Stanford University School of Medicine. Our first few appointments were with a young physician/fellow whom I’ll call Dr. C. …During my final appointment, Dr. C told me, “You’d have more chance of winning the lottery than both of you getting Lyme disease.” Then he strongly recommended that we both seek psychological counseling for the depression we were experiencing.

Dr. D came in at the end of the appointment, handed me a box of tissues, and said, “Sorry, we don’t have the tools to fix what is wrong with you.” Then he dismissed us as patients.

ibid, pp. 85 – 88

As it turned out, most Lyme ticks are also infected with rickettsia, another tick-borne illness that is even harder to detect than Lyme in a blood test: “If you’re not looking for it, you won’t see it.” (231) More in a moment about the reasons for this double infection.

Years later, when Newby had been researching Lyme and rickettsia, she found herself again sitting in front of Dr. D., this time as a journalist rather than a patient.

As I sat in his office, I wondered if he remembered me, but I didn’t mention our previous meeting.

At the end of the meeting, I took a chance and asked him, “Are you screening for any rickettsias?”

He said he didn’t know. The genetic sequencing was being done at Columbia University … Dr. D. opened the study protocol on his laptop and realized there were no rickettsias on the screening list. He said he’d see if rickettsias could be added to the search.

As I got up to leave, he added, “When you came by my clinic before, we weren’t allowed to treat chronic Lyme disease. It was department policy. I’m sorry.”

ibid, pp. 236 – 237

The diagnostic standards: made-up

He was not wrong. The diagnostic standards for Lyme specifically deny that chronic Lyme exists.

In the Infectious Disease Society of America guidelines, chronic Lyme isn’t classified as an ongoing, persistent infection; it’s considered either an autoimmune syndrome or a psychological condition caused by “the aches and pains of living” or “prior traumatic psychological events.” These guidelines were often used by medical insurers to deny treatment, and many of its authors are paid consulting fees to testify as expert witnesses in these insurance cases. In some states, the guideline recommendations take on the force of law, so that Lyme physicians who practice outside them are at risk of losing their medical licenses.

ibid, p. 121

It gets worse. In preparation for her documentary Under Our Skin, the author put in a FOIA request to obtain emails between CDC employees and IDSA guidelines authors. She got the runaround for five years, so they completed the documentary without it. Eventually, she received 3,000 pages of emails which revealed that “a majority of the authors of the 2006 IDSA Lyme diagnosis and treatment guidelines held direct or indirect commercial interests related to Lyme disease … tests or vaccines for which they were patent holders. ” (124) Furthermore, “part of the group’s stated mission … was to run a covert ‘disinformation war ‘ to discredit Lyme patients, physicians, and journalists … ‘loonies’ and ‘quacks.'” (123)

This pill is not just red, it’s black

The Jen of ten years ago would have been very skeptical of this kind of expose. It would have struck me as too similar to Marxist conspiracy theories where all the bad stuff in the world is caused by “capitalists,” which means primarily “big corporations,” but then is applied to anybody who doesn’t want socialism. Journalists, and Hollywood movie directors, love their government/big business conspiracies. It’s one of the very few kinds of story that get them going. Ordinarily, when I am presented with a “corrupt capitalists” narrative, I sympathize with the supposed villains of the piece because I know that the authors of the piece, if they knew my views, would probably villainize me just as readily.

However, when it comes to health, the Jen of ten years ago has seen some stuff since that time. I’ve met people with Lyme (my friend above is the most poignant example, but there have been others). I’ve met people, particularly women, who have had an extraordinarily hard time getting autoimmune type physical complaints taken seriously. I’ve even had that happen, on a small scale, to myself.

Then there have been the scandals. The ADD drugs scandal, the depression drugs scandal, the cross-sex hormones scandal, and the one we don’t talk about, which involved financial incentives for drug companies to discredit victims of their product and doctors who tried alternative treatments almost exactly like the incentives in relation to Lyme described in this book.

So yeah, I’m not that Jen anymore. I do think Newby is a little leftie (maybe a lot leftie), but that’s not why she wrote this book. She wrote it because she got Lyme disease and a series of doctors called her crazy.

My friend with Lyme also has a lot of food allergies and substance sensitivities. During You-Know-What, when one of his kids broke an arm, he was worried about bringing her to the hospital, because they might force You-Know-What on her as a condition of treatment. They got the arm treated without a jab; happy ending. But we live in a relatively red state. This is a horrible position to be in: where you’ve basically lost all trust in the people you need for critical care.

And that’s not even the bad part.

The Bad Part

Most of Bitten is neither about IDSA scandal nor about the author’s personal experience with Lyme. Instead, it follows the life of Willy Burgdorfer, a Swiss-American scientist. Chapter 2 opens with Willy’s triumph when, in 1981, he discovered spirochetes, similar to those that cause African relapsing fever, inside the midgut of a blacklegged deer tick. Burgdorfer became a hero in the medical and scientific communities after he and his team proved that these tick-borne spirochetes were what was causing the mysterious Lyme disease. He received awards and honorary degrees. (13 – 15)

Willy called his discovery “serendipity,” a happy accident.

Shortly before his death, Willy was videotaped saying that he believed that the outbreak of tick-borne diseases that started around Lyme, Connecticut, had been caused by a bioweapons release. [This] could explain why the condition we call Lyme disease is so hard to diagnose and treat–and why the epidemic is spreading so far and so fast, [but] Willy’s confession was vague and fragmented because he was suffering from advanced Parkinson’s disease.

ibid, pp. 15 – 17

The book then backs up and starts with Willy’s childhood in Switzerland and his Ph.D. work there on ticks mailed from East Africa which caused relapsing fever and African swine fever. He does a postdoctoral program at the University of Basel (25), then accepts a research position at the Rocky Mountain Laboratory in Hamilton, Montana, studying Rocky Mountain spotted fever. More ticks! In fact, the biggest tick collection in North America. “The U.S. Public Health Service, which would later be renamed the National Institutes of Health, paid for the lab by developing, manufacturing, and distributing vaccines for … diseases transmitted from animal or arthropod vectors to man.” (35) As the chapters roll by, we follow Willy as he falls in love with and marries a fellow scientist who is a U.S. citizen. Already working for the U.S. government during the Cold War, he soon found himself involved in programs testing nerve gasses and biological weapons.

America’s first deployable incapacitating biological weapon was an aerosolized mix of a toxin, a virus, and a bacterium, designed to create a prolonged period of incapacitation across a population. The first component … SEB, was a toxic waste product of the bacterium that causes food poisoning. In three to twelve hours, [victims] would come down with chills, headache, muscle pain, coughing, and a fever as high as 106 F. The second component, Venezuelan equine encephalitis virus, would, in one to five days, cause a high fever and weakness and fatigue lasting for weeks. The third component, Q fever, would cause debilitating flulike symptoms for weeks to months … Q fever could be chronic and sometimes even fatal.

When exposed to this mass-produced germ cocktail, theoretically, few people would die, but it could put a significant percentage of a population out of commission, making an invasion easier. And no city infrastructure would be harmed. Later, Henry Kissinger questioned how nonlethal these weapons could be and wryly noted that they would be nonlethal only for someone with two nurses.

ibid, p. 145

In other words, this was a way to bomb civilians without bombing civilians.

In other words, weapons developers were mixing different germs and toxins deliberately and putting them into a form that could be easily spread.

Meanwhile, Willy was force-feeding pathogens to thousands of ticks.

Near the end of his life, Willy was interviewed on video by Tim Grey, an indie filmmaker, who later shared the tape with Newby.

“If there’s an emergence of a brand-new epidemic that has the tenets of all those things that you put together, do you feel responsible for that?”

“Yeah. It sounds like, throughout the thirty-eight years, I may have …”

Finally, after three hours and fourteen minutes, Grey asked him the one question, the only question, he really cared about: “Was the pathogen that you found in the tick that Allen Steere [the Lyme outbreak investigator] gave you the same pathogen or similar, or a generational mutation, of the one you published in the paper … the paper from 1952?”

In response, Willy crossed his arms defensively, took a deep breath, and stared into the camera for forty-three seconds–an eternity. Then he looked away, down and to the right; he appeared to be working through an internal debate. The left side of his mouth briefly curled up, as if he is thinking, “Oh, well.” Then anger flashes across his face. “Yah,” he said, more in German than English.

ibid, pp. 100 – 101

So now you know why I’m blackpilled when it comes to “science” and “medicine” and the NIH. This is why Lyme is going around ruining people’s lives. Because it was designed to.

Black-pilled, but still not a hippie

The book closes, as all hippie books must, with the obligatory chapter blaming Western colonialism.

Big Hole [Montana] was the site of one of the bloodiest conflicts between the U.S. government and the Nez Perce. … U.S. soldiers ambushed them while they were sleeping. The Nez Perce lost eight-nine people, mostly women and children, and the U.S. soldiers lost twenty-nine, with an additional forty injured.

Two months later, Chief Joseph surrendered.

The Native Americans who used to live here understood that they were part of nature, not the overlords of all living things.

When the white settlers arrived in the Bitterroot Valley, they clear-cut the trees around Hamilton for their houses, railroad ties, and mine shafts. This fostered the overgrowth of brush, which led to a proliferation of small mammals, the blood meal hosts for the wood ticks that carry Rickettsia rickettsi. The spotted fever epidemic at the turn of the last century was fueled by this disruption of a previously balanced ecosystem.

ibid, pp. 245 – 247

Now, you know that I have a special interest in American Indians, and feel as much sympathy for them as anybody. And just for the record, I am against the massacre of civilians. That said, it is ridiculous to imply that the settling of North America by Europeans is responsible for the existence of the Lyme epidemic, or of disease in general.

It is a fact of history that people groups move, expand, colonize, and kill each other. And as a result of these people movements, ecology changes, and new diseases spread or become prominent. All this is true. It does not follow that, before any given people movement, the ecosystem was perfectly “balanced,” or that there was no disease and no death. There would have been different causes of death, different diseases, and different wars. The Anasazi, for example, were severely malnourished. The Aztecs were systematically wiping out all the other peoples in central Mexico. Montana was not Eden. It’s a fallen world.

Rather than blaming the U.S. soldiers who killed the Nez Perce for the Lyme epidemic, let’s blame them for what they actually did; namely, killing the Nez Perce. And call me an old stick-in-the-mud, but I feel that the blame for the Lyme epidemic should fall on the Cold War era government bioweapons bureaucrats and scientists who actually infected ticks with Lyme and rickettsia, and apparently allowed them to escape somewhere on Long Island. I feel that Occam’s Razor would lead us to point towards them as the culprits, rather than to something big and vague like colonialism. Just a thought.

And I do blame them. Despite my semi-defense of colonialism as the way of the world, no, I do not think it’s a good idea to create a cocktail of infectious agents that result in chronic, debilitating, hard-to-diagnose disease, and then to put this into a form that is easy to disseminate. You don’t have to be a naive, anti-war hippie to realize that this is a terrible idea that is sure to bring Murphy’s Law crashing down upon your head. In the same way, I am just a humble non-scientist but I don’t think it’s a good idea to create a genetic “vaccine” packaged in a lipid particle that instructs the body to make a disease, for which you cannot control the dosage or where it goes in the human body. And I’m not sure it’s such a good idea to stop testing this concoction halfway through, turn up your nose at long-term testing, bill it to the public as safe and effective, ignore contrary data, suppress alternative treatment methods, and then demonize and gaslight people who report injuries. It just seems that there are a few things that might could go wrong there. Just a thought.